Batten Archives - GroYourWealth

Batten disease: Mum fears daughter’s rapid decline without drug

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Post published:21 February 2025
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Chloe AslettBBC News, YorkshireAnna CieslikBeatrice, 5, was diagnosed with Batten disease at the age of 3The mum of a five-year-old girl with a terminal genetic disorder has said her daughter's…

Batten Disease: Parents to celebrate 'last Christmas' with daughter

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Post published:4 December 2023
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Addy Clarke's parents are making the most of time with the seven-year-old, who has Batten Disease. Source link

Batten disease ‘one of the worst in the world’

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Post published:18 July 2022
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Aimee Tilley says she is fighting to prolong the life of her six-year-old son who has Batten disease. Source link