Batten disease: Mum fears daughter’s rapid decline without drug

Batten disease: Mum fears daughter’s rapid decline without drug

Chloe Aslett BBC News, Yorkshire Anna Cieslik Beatrice, 5, was diagnosed with Batten disease at the age of 3 The mum of a five-year-old girl with a terminal genetic disorder has said her daughter’s health is likely to deteriorate quickly if the NHS removes provision of the vital drug which is “keeping her doing”. Two … Read more

Valproate: Mum’s 20-year fight for epilepsy drug compensation

Valproate: Mum’s 20-year fight for epilepsy drug compensation

Peter Saull Political editor, BBC East Midlands BBC Matthew Cox was born with a range of conditions, his mother said “Who will look after our children when we’re no longer here? At the moment that’s nobody.” Catherine Cox, from Keyworth in Nottinghamshire, was one of thousands of women who took the epilepsy drug, sodium valproate, … Read more

Brain drug cure needed for future ‘trapped in’ generations

Brain drug cure needed for future ‘trapped in’ generations

Sharon Barbour Health Correspondent, North East and Cumbria BBC Samantha Denison is at least the fourth generation of her family to have neuroferritinopathy, but her daughter has escaped it A woman who is at least the fourth generation of her family to suffer a “cruel” brain disorder, which leaves people trapped in their own bodies, … Read more

Hair loss drug finasteride ‘biggest mistake of my life’

Hair loss drug finasteride ‘biggest mistake of my life’

Michelle Roberts, Nat Wright and Adam Eley BBC News Kyle Some online sites are prescribing men a hair loss drug that has potentially risky side effects without consistent safety checks, the BBC has found. The side effects of finasteride can include suicidal thoughts and impotence, yet some big brand companies will send the pills in … Read more

First week figures revealed for Glasgow drug consumption room

First week figures revealed for Glasgow drug consumption room

More than 130 people used the UK’s first drug consumption clinic in the facility’s first week. The Safer Drugs Consumption Facility in Glasgow opened on 13 January, letting people take substances under supervision. Cllr Allan Casey, the city convener for addiction services, said it had been an “intense first week” for staff, with 131 users. … Read more

Puberty blockers: Can a drug trial solve the big debate?

Puberty blockers: Can a drug trial solve the big debate?

Getty Images It is among the most delicate and controversial challenges in modern medicine – how to determine whether the benefits of puberty blockers (or drugs that delay puberty) outweigh the potential harms. This question came to the fore in June 2023 when NHS England proposed that in the future, these drugs would only be … Read more

Weight-loss drug Mounjaro ‘changed my life,’ says mother-of-two

Weight-loss drug Mounjaro ‘changed my life,’ says mother-of-two

HANDOUT Alix Harvey started taking the weight-loss drug in May this year Weight-loss drug Mounjaro is set to be rolled out on the NHS in England from March. It is one of many weight-loss drugs that have become increasingly popular in recent years, and are sold privately by clinics and pharmacies. BBC News spoke to … Read more