Advocacy

Rare disease patients and advocacy groups appeal to PM Modi for sustainable funding for treatment

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Rare disease patients and advocacy groups appeal to PM Modi for sustainable funding for treatment

A view of the Indira Gandhi Institute of Child Health in Bengaluru where facilities are offered for treatment for rare diseases. | Photo Credit: The Hindu Several families of children suffering from rare diseases and patient advocacy groups (PAGs) have appealed to Prime Minister Narendra Modi and Union Health Minister J.P. Nadda to remove the … Read more

Advocacy groups challenge FSSAI’s draft notification on removing warning labels from iron-fortified food products

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Advocacy groups challenge FSSAI’s draft notification on removing warning labels from iron-fortified food products

A file photo of normal and fortified rice. According to advocacy groups, all food products must carry warning labels so that vulnerable groups can avoid fortified foods. The Food Safety and Standards Authority of India’s (FSSAI) draft notification on an amendment to remove crucial warning labels on iron-fortified food products for individuals with thalassemia and … Read more