Batten disease: Mum fears daughter’s rapid decline without drug

Batten disease: Mum fears daughter’s rapid decline without drug

Chloe Aslett BBC News, Yorkshire Anna Cieslik Beatrice, 5, was diagnosed with Batten disease at the age of 3 The mum of a five-year-old girl with a terminal genetic disorder has said her daughter’s health is likely to deteriorate quickly if the NHS removes provision of the vital drug which is “keeping her doing”. Two … Read more

Rare disease patients and advocacy groups appeal to PM Modi for sustainable funding for treatment

Rare disease patients and advocacy groups appeal to PM Modi for sustainable funding for treatment

A view of the Indira Gandhi Institute of Child Health in Bengaluru where facilities are offered for treatment for rare diseases. | Photo Credit: The Hindu Several families of children suffering from rare diseases and patient advocacy groups (PAGs) have appealed to Prime Minister Narendra Modi and Union Health Minister J.P. Nadda to remove the … Read more

No conclusive data to establish direct correlation of disease exclusively due to air pollution: Govt

No conclusive data to establish direct correlation of disease exclusively due to air pollution: Govt

Buildings are enveloped in smog due to air pollution in Delhi, India, November 29, 2024. | Photo Credit: REUTERS Air pollution is one of the aggravating factors for respiratory diseases, however, there is no conclusive data available in the country to establish a direct correlation between any disease caused exclusively by air pollution, MoS for … Read more

Plan for workplace health checks to curb heart disease

Plan for workplace health checks to curb heart disease

More than 130,000 people in England will be offered free workplace health checks in the next six months under a new initiative to try and prevent heart disease. From September, employees in several sectors including building and hospitality will be able to access quick assessments that will determine their risk of developing cardiovascular disease (CVD), … Read more

New vaccine for respiratory disease rolls out in Scotland

New vaccine for respiratory disease rolls out in Scotland

PA Media A new vaccination programme aimed at protecting newborn babies and older adults against a dangerous respiratory disease is now being rolled out in Scotland. The Respiratory Syncytial Virus (RSV) immunisation programme begins on Monday morning, and will be offered in the other UK nations from September. RSV is common and highly infectious. It … Read more

Why an ‘AI health coach’ won’t solve the world’s chronic disease problems – ET HealthWorld

Why an ‘AI health coach’ won’t solve the world’s chronic disease problems – ET HealthWorld

Melbourne: Last week, two big names in the artificial intelligence (AI) and wellness industries announced a collaboration to develop a “customised, hyper-personalised AI health coach that will be available as a mobile app” to “reverse the trend lines on chronic diseases“. Sam Altman (head of OpenAI, maker of ChatGPT) and Arianna Huffington (a former media … Read more

Sunderland boy ‘only one in UK’ with rare fatal disease

Sunderland boy ‘only one in UK’ with rare fatal disease

5 hours ago By Jim Scott, BBC News, North East and Cumbria BBC Chemie-Leigh Lewis says Grayson is generally a “happy” child The mother of the “only person in the UK” living with the rare and fatal condition Arts Syndrome said she had to fight for “life-changing” medication for her baby son. Chemie-Leigh Lewis, from Houghton-le-Spring on … Read more