Batten disease: Mum fears daughter’s rapid decline without drug
Chloe Aslett BBC News, Yorkshire Anna Cieslik Beatrice, 5, was diagnosed with Batten disease at the age of 3 The mum of a five-year-old girl with a terminal genetic disorder has said her daughter’s health is likely to deteriorate quickly if the NHS removes provision of the vital drug which is “keeping her doing”. Two … Read more